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How is myopathy dermatomyositis treated?
Classification: medical and health care

Analysis:

Skin symptoms of patients with polymyositis and dermatomyositis

Skin injury is usually the first symptom that patients with dermatomyositis notice. According to statistics, among 12 1 DM cases, 88.4% were skin first onset, and only 2 cases (1.6%) appeared after myositis. In recent years, the literature reported about 8% cases. Only a rash, long-term follow-up without muscle lesions, known as "dermatomyositis." That is to say, occasionally patients have typical skin lesions for up to 2 years without myositis, which is called "myopic dermatitis" (amyopthic DM).

The lesions of this disease are various, and some are the first symptoms. Some of them are specific and helpful for diagnosis. Some are related to visceral malignant tumors, and some are related to prognosis. Skin lesions are often not parallel to the degree of muscle involvement. Sometimes, skin damage can be extensive, with only mild myositis. On the contrary, there are serious muscle lesions and only slight skin lesions. Sometimes skin lesions reflect the degree of muscle lesions.

Patients with myopathy and dermatomyositis can go to regular provincial hospitals with good conditions for immunology and routine urine examination; Patients should be actively treated as soon as possible. This disease is an autoimmune disease, and the patient's health, body and mind are tortured by the disease, and I deeply sympathize with it. We should pay close attention to the treatment, and it is best to treat this disease with pure Chinese medicine of cooling blood and detoxifying A3 (immune prescription A3) of the expert group.

Patients with dermatomyositis can quickly cure complications by adding traditional Chinese medicine with heat-clearing and detoxification formula. Because patients with dermatomyositis and other diseases (connective tissue disease) have low immunity and weak constitution, they are prone to pneumonia, mumps, colds, fever and other diseases.

Patients should not worry too much. Patients should be treated as soon as possible, and the sooner the better. Don't delay the opportunity of treatment and cure.

Western medicine hormones and other drugs treat dermatomyositis, but the side effects are limited, the effect is not ideal, the condition is repeated, only the indicators can not cure the problem, the patient is suffering, and many complications will occur for a long time; It is better to treat this disease with pure Chinese medicine, treating both the symptoms and the root causes. Traditional Chinese medicine treatment is stable and ideal, without any side effects, and it is not easy to relapse after cure.

The expert group's pure Chinese medicine prescription for cooling blood and detoxifying has broken through the traditional method of hormone treatment in western medicine and created a new way to treat dermatomyositis by treating both the symptoms and the root causes.

Patients can be hospitalized for dermatomyositis, or they can be treated by mail order, using the pure Chinese medicine prescription of the expert group; Patients can be treated with the traditional Chinese medicine prescription of the expert group to cool blood and detoxify, and they can work and treat at the same time without delaying their work and study.

Chinese medicine treats patients according to their symptoms, and makes a treatment plan to make them recover gradually.

At present, the expert group of traditional Chinese medicine adopts pure Chinese medicine "cooling blood and detoxifying A3" (immune prescription A3), which has made a breakthrough in the treatment of dermatomyositis. With the treatment plan of the expert group, most patients can fully recover.

Generally, after taking the expert group's pure Chinese medicine prescription for 30 days, the symptoms and illness are obviously improved, and the side effects gradually disappear. Patients who take hormones and other western medicines can gradually reduce the dosage of hormones to zero.

A3 (immune prescription A3), a pure Chinese medicine studied by the expert group, has a good curative effect on dermatomyositis, has no side effects, and is not easy to relapse after being cured.

The main components of the medicine are more than 30 kinds of Chinese herbal medicines such as honeysuckle, salvia miltiorrhiza, dogwood, American ginseng, cordyceps sinensis and rhodiola. The medicine has the functions of clearing away heat and toxic materials, cooling blood, promoting blood circulation, invigorating qi and nourishing yin, enhancing human immune function, inducing human body to produce fresh and powerful interferon, making the body fully recover, breaking through the tradition of treating dermatomyositis and other diseases with hormones in western medicine, and creating a new way to treat both symptoms and root causes. After taking this medicine, with the gradual improvement of the condition, the dosage of hormone can be reduced to zero.

Patients can come to Beijing for treatment. If they can't come to Beijing for treatment, please fax or mail copies of laboratory tests, examinations and medical records. After consultation, our expert group will make a treatment plan according to the patient's condition (dermatomyositis), which can be treated by mail order. In the process of treatment, the patient called the expert group to guide the treatment and achieved good results.

Cooling blood and detoxifying A3 (immune prescription A3), 30 bags of medicine every 30 days (please follow the doctor's advice), the medicine fee is 962 yuan, and the postage is 60-80 yuan (refund); Three months is a course of treatment. General 1-3 courses of treatment can gradually cure. If the condition is serious, the course of disease is too long and the drug absorption is too poor, the patient needs to extend the treatment time.

Generally, it takes about 30 days to get obvious effect, with an effective rate of 98.6% and a clinical cure rate of 78.3%.

According to the patient's condition, the following drugs can be added: 1. Tortoise shell glue or antler glue (available in Chinese medicine stores or by mail order), twice a day, once and a half small pieces, dissolved in warm water, taken after meals. 2. Four big red dates each time, three times a day, steamed and eaten properly. 3. If you are taking hormone therapy now, don't stop for a while, and then gradually reduce the dosage of hormone after taking Chinese medicine for 30 days, generally reducing 65,438+0/4 tablets every 65,438+05 days. Call for advice under special circumstances to prevent the disease from recurring due to the rapid drop of hormones. For example, if you take 2 tablets a day now, it will not decrease for a period of time, and then gradually decrease after clinical cure.

For patients who have taken hormones and other western medicines, don't stop taking them themselves. Please reduce it gradually under the guidance of experts.

Contraindications: 1. Wine, seafood, mutton, dog meat, pepper, tea, spicy food; All foods containing preservatives and additives, such as instant noodles, canned food, beverages, etc. Without penicillin, patients should avoid sunlight and cold.

And sulfonamides. 2. Milk, mung beans, raw eggs, etc. It is not suitable to be taken with Chinese medicine at the same time, but after 30 minutes.

Expert outpatient hospital address:

1, Clinical Research Base of Science and Technology Cooperation Center of Dongcheng Hospital, Chinese Academy of Traditional Chinese Medicine, Expert Group on Connective Tissue Disease of Lupus Erythematosus.

(Room 20, South Building, No.98 Xin 'anli, Brick Factory Hutong, Gulou Square, Di 'anmen Street, Dongcheng, Beijing) Opposite to Di 'anmen Shopping Mall.

Tel: 010-* * * * * * * * * * * * * * (fax is also acceptable).

Contact: Li Yun

Postal code: 100009

2. Expert Group on Connective Tissue Disease of Lupus Erythematosus, 2nd Floor, Beijing Zhonghui Hospital.

Tel: 010-* * * * * * * * * * * * * * * * * * * * * * * * * * * * (you can also fax it).

Building 2, East Zone 3, Tiantongyuan, Changping District, Beijing (Anli Road, lishuiqiao North)

Mailing address: Li Yun (receiving), Box 3, Shahe Post Office, Changping District, Beijing, with postal code: 102206.

For patients' reference: side effects of hormone drugs: 1, body fat; 2. It can cause osteoporosis and necrosis of femoral head; 3, the body's resistance drops and so on.

Hormones and immunosuppressants have certain effects on sexual function. Long-term high-dose use of corticosteroids such as prednisone will aggravate sexual dysfunction. Almost all immune preparations will damage testicular atrophy and ovary, leading to the decline or disappearance of spermatogenic function, disappearance of * *, and impotence.

Matters needing attention in life, rehabilitation and nursing of polymyositis and dermatomyositis

Reference 1:

1, keep a peaceful mind. Polymyositis and dermatomyositis are not incurable diseases. Don't be pessimistic. In fact, it is still an autoimmune disease like coronary heart disease, hypertension and diabetes, and it needs long-term treatment and intervention to stabilize the disease until it is cured. Even after some Chinese and western medicine treatment, the disease is still developing, so there is no need to be afraid, let alone lose confidence and give up treatment. In the process of seeking medical treatment, we should realize that it is still a worldwide difficult disease, systematic and regular treatment can control and stabilize the disease, and it can be cured without medication.

If we can maintain a relatively peaceful mentality, it will be more conducive to mobilizing our own disease resistance potential (which has long been scientifically confirmed), and it will be very helpful for the rehabilitation and treatment of diseases. Therefore, it is very important to establish confidence in overcoming diseases, have tenacious perseverance and maintain a peaceful and open-minded attitude.

2. Prevent all kinds of infections, especially severe acute infections and chronic infections, which may easily lead to the recurrence or aggravation of diseases. Therefore, active prevention and control of various infections is particularly important for the treatment of diseases and the prevention of recurrence, such as: avoiding sweating, changing clothes in time, living sometimes, strengthening physical fitness to prevent colds and so on. Once the infection is found, it must be actively and effectively controlled, but be careful not to overdo it. The abuse of antibiotics is also very unfavorable to the enhancement of physique and the recovery of immunity.

3 Moderate exercise to avoid fatigue As the saying goes, "Moderate exercise is better than taking tonic". Don't rush the exercise. We should stick to it moderately according to our physical strength and endurance, that is to say, a small amount of moderate, persistent and random exercise is very beneficial to health. On the contrary, high-dose, forced, short-term and strenuous exercise is not only unhelpful but also harmful to the body, which is a kind of damage to the body organs. The health status of medical staff and athletes can be seen at a glance.

4. Slow down hormone secretion. This disease is an autoimmune disease. Hormone is an effective treatment for most patients, especially during acute activity. However, long-term large-scale application or abuse is easy to produce some side effects, such as osteoporosis, elevated blood sugar, corticosteroid symptoms, digestive tract ulcers, electrolyte disorders and so on. Application is not standardized (random addition and subtraction, drug withdrawal, etc.). ) it is easy to aggravate the condition repeatedly, and it is even difficult to treat it again.

Therefore, friends suffering from this disease and people who are suffering from it should bear in mind that under the guidance of experienced and highly responsible specialists, the combination of traditional Chinese and western medicine should be carried out step by step, following the law of disease occurrence and development, hormone withdrawal and Chinese medicine treatment, with ideal and stable effects.

5, daily life conditioning can not be ignored, especially dermatomyositis, such as avoiding direct sunlight (mainly ultraviolet rays), taking a hat, gloves, long-sleeved clothes or umbrella when going out; Try not to eat seafood (fish, shrimp, crab) and other foods that are easy to cause allergies; Avoid spicy food (onion, ginger, garlic, etc. ); Eat less greasy food; Do not have enough to eat; Smoking and drinking are prohibited; No cosmetics or hair dye; Avoid contact with pesticides and some decorative materials;

Many factors in daily life have adverse effects on dermatomyositis patients, which should be paid attention to. If you should try to avoid the sun, take a hat, gloves or long-sleeved clothes when you go out. Do not eat or eat less celery, day lily, mushrooms and other foods that enhance photosensitivity or promote immune function, as well as fish, shrimp, crabs and other foods that are easy to cause allergies. Avoid smoking and drinking. Do not wear lipstick, cosmetics, hair dye, etc. Avoid contact with pesticides and some chemical decoration materials.

Women of childbearing age should try to avoid pregnancy and abortion when their condition is not very stable, and delivery should be carried out under the guidance of a doctor. In addition, ensuring adequate sleep, combining work and rest, maintaining a good mood, exercising moderately, not being too tired and nervous, not doing strenuous activities, and regular follow-up outside the hospital are very helpful for the recovery of the disease and preventing recurrence. Follow-up and review regularly according to the condition and the needs of diagnosis and treatment, so as to know the changes of the condition in time and adjust the drugs according to the doctor's advice. After the condition is stable or the drug is stopped, it should be reviewed once a year in spring and autumn to prevent problems before they happen.

Reference 2:

First, we should have confidence and perseverance.

Patients with dermatomyositis should be clear that they are not suffering from an "incurable disease" and should not be pessimistic and depressed. Even after some Chinese and western medicine treatment, the condition is still developing, so don't be afraid, let alone lose confidence and give up treatment. However, we should also clearly realize that dermatomyositis is indeed a very difficult disease to treat. We must have firm confidence and tenacious perseverance, and maintain an open-minded and cheerful mental state, in order to fully mobilize our disease-resistant potential, and finally overcome dermatomyositis and get rehabilitation.

Second, we must adhere to long-term correct and reasonable treatment.

Dermatomyositis is a disease that is difficult to treat. "Illness comes like a mountain, and illness goes like reeling." Only under the guidance of experts with rich clinical experience and high sense of responsibility, adhere to long-term, systematic, regular and reasonable treatment of integrated traditional Chinese and western medicine, can we achieve the best curative effect and even recover. Never go to the doctor indiscriminately, abuse drugs or reduce or stop taking drugs at will, so as not to take the detour of "haste makes waste". Once the disease recurs, it will often get worse.

Third, prevent all kinds of infections

Various bacterial, viral and fungal infections are not only common and important inducing factors of dermatomyositis, but also common complications, so it is very important to prevent infection. Patients should pay attention to nutrition, avoid adverse effects such as colds, and exercise moderately according to their own physical strength to enhance their anti-infection ability. In addition, we should adhere to the combination of traditional Chinese and western medicine treatment, rational use of hormones and immunosuppressants to avoid serious infection. Once an infection occurs, it must be treated promptly and effectively to avoid adverse consequences.

Reference 3:

Life adjustment

1. In acute phase, you should stay in bed and do passive activities of joints and muscles twice a day to prevent tissue atrophy, but active activities are not encouraged. 2. Moderate and mild exercise can be carried out during the recovery period, but the exercise should not be too fast and the range should not be too large. According to the degree of muscle strength recovery, gradually increase the amount of activity, functional exercise should avoid excessive fatigue, so as not to increase serum enzymes. 3. Keep optimistic spirit and firm confidence in overcoming diseases.

(2) Diet conditioning

1. Arrange the diet reasonably to ensure adequate intake of vitamins and protein.

2. Do not eat fatty, sweet, cold and spicy products, so as not to hurt the spleen and dampness.

3. Clinical medicated diet therapy usually focuses on strengthening spleen and tonifying kidney. Chinese yam, coix seed, Smilax glabra, Cordyceps, Angelica sinensis, Lycium barbarum, Colla Corii Asini, Ganoderma lucidum, Placenta Hominis, etc. can be used as dietotherapy drugs.

Reference 4:

1, the effect of dermatomyositis on sexual function and * * *

Early dermatomyositis has little effect on sexual life, but when the muscles atrophy obviously, it is difficult to have effective sexual life because of muscle weakness and fatigue. At the same time, when the appearance of dermatomyositis patients changes, especially when swollen purple spots appear on the eyelids, it will seriously affect the mood of patients and aggravate sexual dysfunction. Dermatomyositis complicated with cardiopulmonary disease or malignant tumor is more difficult to maintain normal sexual activity because of general weakness. At this time, patients often appear apathy, impotence, menstrual disorder, vulvar dryness. Dermatomyositis patients with arthritis symptoms will also bring inconvenience or pain to * * * activities.

Corticosteroids and immunosuppressants have certain effects on sexual function. Long-term high-dose use of corticosteroids such as prednisone will aggravate sexual dysfunction. Almost all immune preparations will damage testicular atrophy and ovary, leading to the decline or disappearance of spermatogenic function, disappearance of * *, and impotence.

2. The influence of sexual life on dermatomyositis

Sexual life has no adverse effects on dermatomyositis, such as sexual requirements, indicating that the degree of illness is still light and the quality of life is acceptable. At this time, there is no need to forcibly suppress lust. Through proper * * *, it is only physical consumption, and sometimes it can give atrophied muscles a benign * * *.

3. Sexual life guidance

When there is a erythema rash on the face, there is no need to be overly nervous and anxious, because bad emotions will hinder sexual function. When the muscles near the limbs are atrophied and weak, it is necessary to strengthen active exercise and passive * * * to prevent muscle atrophy. At this time, sexual life may feel overwhelmed and unsustainable. But sex itself can also achieve the effect of exercise, so don't give up easily. The following measures can be taken to ensure the smooth completion of the * * * process: if the sick party occupies a seat; Hug and touch each other for a long time; * * * Take a rest when you are tired; * * * Before having a healthy spouse for physical exercise * * * and so on.