? I am 30 years old and have a husband but no children. From the countryside, 20 1 1 stayed in the provincial capital after graduating from college. I thought everything was so smooth before I got sick. Although my grades are not particularly good, I can go to school smoothly every exam. There are always a few good friends around, eating, drinking and having fun together, always carefree. At that time, I thought that the greatest pain in life might be lovelorn.

Get sick for the first time

? Until the summer of June, 20 15, I had a headache for almost a month. At first, I thought it was a common headache, so I took various headache medicines, and later it became more and more serious. I went to the community hospital to hang up the needle and had a special massage, but it didn't work. I searched the internet for the treatment of migraine myself, such as soaking my hands in hot water. That kind of headache is intermittent and urgent, but it never gets better.

? My cousin knew that he couldn't speak well, so he went to the hospital to register. This is my first time to go to a hospital in Kunming. I looked it up on the internet and said that headaches were linked to neurology, so I hung up an ordinary number. There were many people that day, and I glanced at them, almost all of them were elderly people over 60 years old. The doctor asked me a few simple questions and asked me to do a CT, so I did. I got it the next day and went back to work, feeling much better.

On the day I got the film, I read the report that "it may be meningioma" and suggested magnetic resonance imaging. I didn't panic, and I didn't know what the disease was. I signed the expert number in advance, but I'm also a neurologist. This time, people will arrive at me soon. The doctor looked at the film and told me that I had the wrong number. I should hang up the neurosurgery next to me and say that I can only do surgery. Don't believe people outside say that I will disappear if I take medicine. I was watching neurosurgery on my mobile phone, and I just had an expert number, so I hung up. There were far fewer neurosurgeons. It was almost four o'clock and the expert number was gone. I saw it as soon as I entered. The doctor gave me a hospitalization form directly, told me to go to the inpatient department to find a resident, and gave me an MRI. It was not until I paid for the MRI that I began to search Baidu for this disease that I had never heard of. I was in a daze during the period, only remembering that the doctor said that most of the disease was benign. It was not until my sister called me that my nose began to get sore. As soon as she got off work, she came to do an MRI with me. My husband was still a boyfriend at that time. We fixed a wedding date and bought a ring. He was still in the army, so he called me to ask about the test results. I didn't answer the phone, so I sent him a message I said I was afraid I would cry, so I told him not to call to exchange information.

? I was admitted to the hospital shortly after I had an MRI. At that time, I just worked as an intern in my current company and haven't signed a contract yet. After hospitalization, the doctor said that the operation was arranged, and that although it was a little big, the location was good, so let us rest assured. I really stopped worrying about my illness and began to worry about medical expenses. I changed my internship and lost my medical insurance for several months. The doctor told me when he opened the hospitalization bill that it was estimated to be around 60 thousand. After working for two or three years, I have spent all my money, and I don't know how to save some money.

I was afraid to tell my family about my illness, but my sister told my parents. My dad said I don't care about money. He'll find a way. Later, they came to the hospital from their hometown with their family savings. There are many relatives in Kunming, and all kinds of concerned calls come, and I just cry.

? I will be scheduled for surgery soon. The doctor who admitted me is the chief physician. Before the operation, he told me that he was going on a business trip. After the deputy chief physician finished the operation, he became my chief surgeon. Said that my tumor was very big next to the cerebral sickle (I remember it was like 7 o'clock), but they were all confident and my heart was relaxed. I don't remember the process and recovery of the first operation clearly, but I feel that many relatives are waiting at the door after a sleep. The first thing I do when I come out is to arrange for them to eat. Later, I stayed in the observation room for a few days and returned to the general ward for a few days before I was discharged. After leaving the hospital, my father stayed with me at my relatives' home for almost half a month. At that time, I rented a house with my sister because I worked in the park.

? Soon I went back to work, no different from before. I wore a headscarf and hat until my hair was short and the wound on my head healed. I bought very neutral clothes and dressed myself cool. It only takes two months from hospitalization to returning to work. Although I also checked on time, I didn't take the disease seriously. Eat, drink and be merry as usual, carefree. In September, we went to the place where my husband was in the squadron and got a marriage certificate. 165438+1In June, he took a vacation and got married. I also signed a contract with the company. Everything is as usual.

? Get sick for the second time

? /kloc-Before the Spring Festival in February, 2007, I suddenly felt that my left leg could not keep up with my right leg. It's been more than half a year since I last reviewed. I also went to see a doctor when I had headaches and other symptoms. The doctor said it was no big deal and gave me something to relax. However, the situation of my leg is becoming more and more obvious. I vaguely feel bad, but the Spring Festival is coming, and we are busy buying furniture just after buying the house. I just want to wait for my husband to take a vacation after the Chinese New Year.

? I'm already familiar with it, and I just opened the MRI list. Just finished the exam and just came out. I got a call from a strange number. It was a doctor in the examination room who asked me if I was sure I had an operation. I was surprised to ask if the test result was bad. The doctor didn't say much and hung up. I'm pretty sure it's a relapse.

? Sure enough, it turned out that another one about the same size grew in the same place. Doctors don't know why a short year can grow so big. But he assured me that they would not leave me alone. Then, accompanied by his family, he began to be hospitalized again. They even put me in line for surgery. This time, the chief physician worked together. I am immersed in my sick mood again, and I don't have time to think so much. I just followed the arrangement mechanically. My parents are from the countryside and only listen to the doctor. My husband knows nothing in the army all the year round. So once again, we choose to trust the arrangement of the attending doctor. Father said that as long as the doctor said that he could be cured and operated, he was not afraid of anything, and he would try to pay for it. Maybe he met many patients who were not allowed to take home in the hospital during his life experience.

? I will remember this operation deeply. The operation lasted for a couple. Go in at eight in the morning and come out at eight in the evening. I remember everything before anesthesia during the operation. I was taken to a familiar operating room, lying on a cold operating bed, and then the anesthesiologist began to puncture and needle me, because it was particularly painful without anesthesia. I cried a lot in pain, and the attending doctor came to comfort me and said not to be nervous. Then the anesthesia machine came and I didn't know when I fell asleep. When I woke up, I heard someone calling me again. I don't know where I was lying, but I didn't see my family. I called the doctor and the nurse asked what was wrong. I said "thank you, doctor", and she said don't call a doctor if it's okay, or she will be nervous.

? Later, I was pushed out to see my father's eyes were red, my relatives and friends were there, and my mother cried several times, and her eyes were swollen. I asked them if they had eaten. Let my dad tell my grandparents that they are safe. Then I'm always excited. I have been chatting with my friends. The scalp is a little tight and I don't feel uncomfortable.

I was pushed into the observation room again. There are many patients and their families in the observation room. I always look at a blue bottle on the opposite hospital bed. My dad said it was a brand with needle water, not a bottle. I don't believe it. I want to raise my hand, but my husband can't. I just found that my left foot can't move either. I can't move my left side. I'm a little annoyed. The more I want to move, the more I can't control it. I am paralyzed!

? I can't turn over at night. My back hurts and my heel hurts. I've been very angry. I don't know who I'm angry with. Maybe I will be a cripple in the future. I crumpled the hospital gown and stuck it on my body. I shook my head, only my head was moving, and there was a drainage bag hanging on my head. The doctor told them to look at me and wouldn't let me move. I was even more angry. The body on the left side is heavy when it is completely motionless. Every time I ask to turn over, I feel that my right body is falling apart. I kept asking for turning over all night, and sometimes I could only keep a posture for two or three minutes. Shouting back pain, torturing them all the time. At that time, I secretly vowed that even if I died, I would never come for surgery again.

? After two days like this, I still can't move my hands and feet. You vomit when you eat, drool all day, and you need two rolls of paper a day. On the third day, my left leg suddenly began to beat a little, like my heart was in that position. I was a little happy at first. I told my dad that I felt something in my left leg. The next second, the whole left side began to twitch and lose control. Head tilted eyes, conscious but out of control. They called the doctor at once. The doctor asked me if I was conscious, and later said I was epileptic. The first seizure in my life lasted only a few minutes. I still can't move my left side after the end, and I'm a little discouraged. Later, I had another attack twice during my hospitalization, and I was conscious. Every time I tell them that the seizure is going to happen again, it really happens. The doctor increased the dose of antiepileptic drugs for me.

? I can't move, I can't eat and vomit, and my recovery is very slow. I stayed in the observation room for almost a week. During the period, my memory was a little blank for a few days, and I was confused all day. I just remember talking nonsense. Later, my husband and dad told me that I still beat them, and I wanted to beat them crazy. I called the doctor and I answered the doctor's question well. As soon as the doctor left, chaos began again. My sister said that if I didn't invite a psychiatrist to see me in the future, I was afraid that I would have psychological problems because I couldn't move. I don't remember how I went crazy. I only remember that when my friends and relatives came to see me, I mistook one for another, and I couldn't remember their names. It's just that it doesn't come out on my lips, and sometimes it's particularly annoying.

? Later, the situation was always bad, and I was dragged to have an examination, saying that there might be water accumulation, so I was confused. There are also various operations to pump stagnant water without anesthesia, but I don't feel particularly painful, because my whole body hurts, and I am very sad. Later, when his condition improved and he began to recognize people, he was transferred to the general ward. In front of my bed, there is a water dispenser with a cup on it, and there is a half-empty water dispenser with a cup on it. I saw that my father had two pairs of eyes, one on his forehead and his eyebrows followed. I think this is very interesting. I started eating, and I carried it myself. At that time, the left hand moved slightly, but its strength was still very weak. Sometimes I fall asleep after eating my rice bowl. Later, my husband told me that I didn't want them to feed me.

? I especially want to eat fruit in the hospital, but if I eat a little, I will vomit, so I order them to eat oranges, bananas and grapes next to me every day. I'm glad to see them eating. I can't eat if I don't want to. I have to eat.

? After my physical strength recovered a little, I called a rehabilitation doctor to give me rehabilitation every day. He just taught me how to sit up and get out of bed. I won't be upset and uncooperative at first, and then he said, do you want to stay in bed all the time and even ask your family to help you get up? I was stimulated and then tried to sit up slowly, and my confidence doubled. Later, he taught me how to stand up and stood up and studied for several days. But after I stood up, I couldn't leave.

? There was an old man on the bed next to me at that time, and his two eldest sons were greeting him. I have a husband and parents. We do rehabilitation training together. He is better than me, but he can't walk well. Every day is like a competition. We both start waving early and cheer each other up. His family and my family also chatted and cheered for us.

? Later, he was discharged from the hospital first, and I transferred to the hospital rehabilitation department to continue rehabilitation treatment. I will stand up slowly, move two steps and feel much better. The most active patient in the whole rehabilitation department is me. One day I was very busy. The doctor gave me various rehabilitation treatments, and sometimes I was in a hurry to eat. Fortunately, the left hand is getting stronger and stronger, and the left leg is beginning to move a little.

? I had another worry during my stay in hospital, that is, going to the toilet. It is very troublesome to go to the toilet after pulling out the catheter. I won't lie in the urinal and pee. I can't do anything. I don't feel well. You can pee when you get out of bed, but you won't poop when someone is around. Therefore, my husband can only carry me to the toilet every time. He went to the toilet behind my back for a whole month, and went to the toilet frequently with various injections. A doctor said with a smile, your husband is so kind to you. It should be childhood friends! When she was still sitting unsteadily, my mother looked at me in the toilet. I scolded her, and she could only watch the toilet door, waiting for the door to open a small crack.

Later, my husband went back to the army on holiday, and my mother stayed with me in the rehabilitation department for a while. I can move slowly by myself, but I can't control it completely below my ankle, and I still can't. The doctor said that the possibility of full recovery is very small and the recovery time will be very long. We were discharged from the hospital and wanted to go back to our hometown to recuperate slowly. Now that I think about it, I should do more rehabilitation training in the hospital, but at that time the hospital was boring.

Get sick for the third time

? When I left the hospital, I rechecked the MRI. As a result, I saw a report on my mobile phone that there was another small tumor on my forehead. At that time, I didn't care so much. I just wanted to know when I could walk. My sister went to see the doctor in charge of the film, and the doctor said that she would do gamma knife after recovery.

? After returning to my hometown in Dali, the air is good and I feel comfortable. My father gave me a small bed under the arbor in my yard. He reads books and plays mobile phones on it every day besides exercising. Take my niece from my sister's house next door to play occasionally. Get up early in the morning and walk, limping, but always feel more and more energetic. I seldom think about the tumor on my head.

Every three months, my father accompanied me back to Kunming for a review. Sometimes it grows a little, and occasionally it doesn't change. The doctor later said that surgery was the best, so he didn't do gamma knife. We were allowed to have surgery a few years ago, but I want to do it again next year and then go back. I don't know when I will have the courage to operate again.

17? My husband discharged from the army in February. I thought he could stay with me when I had surgery after the New Year. Later, my mother insisted that I would not do it in Kunming this time and let me go to Beijing to have a look. I hung the number of the Temple of Heaven on my mobile phone, and I didn't want to go that far. I asked an expert to have a good look. My mother and my husband accompanied me to Beijing and have never been far away. I feel a little unhappy that some patients have to pull them up. Go out and do everything on your own.

? When I arrived in Beijing, I stayed at the home of relatives and friends, and it was also the "guest house" of our company. There is a girl about my age at home in his family, who is very enthusiastic to help me check the information online. But she doesn't understand the disease either, saying that Peking Union Medical College Hospital is the best. I haven't heard much about Tiantan Hospital. At that time, the Temple of Heaven was still a dilapidated old hospital, so I hung up the expert number of Union Medical College Hospital.

? It was the weekend when I went. I took my husband and my mother around the Forbidden City for a day. When I went to the imperial garden, I felt small and shabby, even less than the ordinary yard. It was winter, and it was still depressing. I am used to staying in a place where there are flowers and trees all year round, so I am a little disdainful.

When I went to the Union Medical College Hospital to see the dealer, the doctor said that the operation was still very successful, so let me exercise my feet well. It may be related to genes. It is ok to have an operation in their hospital. Let me leave my phone number. So I left my phone number.

? At noon, college students invited us to dinner. In the afternoon, I went to Tiantan Hospital. The registration number is Zhang Junting team doctor. The doctor has a bad attitude towards playing mobile phones. I watched the film and said that you are still young to observe. I patiently told him about the first two operations. He said that the operation should be done as soon as possible, and it is estimated that there will be a long queue in the Temple of Heaven. I told him how long it would take, and he said it would take at least half a year or more.

I backed out, for one thing, I had a bad impression on the doctor, and for another, I didn't think I could wait that long. Later, after discussion, I bought a plane ticket and went back to Kunming. I had already gone through the formalities of going out to see a doctor before I went, but I didn't expect to come back.

? Go straight to the attending doctor for hospitalization after you come back. The doctor said that the tumor should not be so big this time, and a hole should be opened from the front. This time, the tumor is smaller and simpler. After the operation, I was asked to do several radiotherapy. I should have done the second operation, but I didn't do it when I found a tumor.

? 2065438+hospitalized again in February 2008. After entering the operating room, I told the anesthesiologist that the last puncture was too painful. Please do it after you knock me out! I fell asleep soon. The recovery after the third operation is similar to that of the first operation, and there is no special memory. I only remember that the third pathological result was upgraded to grade 3, and the doctor didn't say much. I know this is the highest level.

After leaving the hospital, I went home for two months, came up for reexamination, and then was hospitalized for radiotherapy. During radiotherapy, the doctor introduced apatinib, and when the blood pressure was high, the doctor asked him to take it with antihypertensive drugs. It was a self-funded medicine, which was very expensive, and then I stopped two boxes because I still felt uncomfortable. The reaction during radiotherapy was not very great. I had a headache for two days and hung up an extra bottle of mannitol. I just take a lot of medicine every day, and I take a box of medicine every week on average.

? I was hospitalized once after radiotherapy. Because my mother was doing hysteromyoma surgery in Dali, I went to the hospital to take care of it for a week, and then I came back with a terrible headache and was hospitalized for a week. In my mother's hospital, people thought I was the patient, limping and not wearing a hat. Every time the nurse walks into the room, she will take my blood pressure and temperature. I said I'm not a patient.

follow-up action

? I took another year off. This year, I played my hobby to the extreme to pass the time. My husband started looking for a class. I exercise at home every day, clean up, draw pictures, read books, do handicrafts, play games and cook dinner for him at night. In this way, I still feel that every day passes slowly, thinking about when I can go back to work day by day.

? 2019May Day, I called the company and said I wanted to go back to work. The company still takes care of me as always. Since I signed a contract to buy insurance, although the nursing homes spent a lot of money in the last few times, most of the medical insurance was reported, and the remaining companies can still reimburse me. Moreover, every year, trade unions and party groups will give me solatium. With the concern of my colleagues, the pressure on money has been reduced a lot. After I proposed to go back to work, the leader still cared about me and arranged a position that I was satisfied with. My husband also came to my company leader at the end of 18, saying that he was unemployed, and he was sent to our company when the company was recruiting external employees. He happened to drive me to work.

? I've been on sick leave for two years, and sometimes I get dizzy and headache when I first started working. I'm not used to it, but I don't want to give up, because I don't want to go back to the days when I was doing nothing at home. It will be much better after a long time. Now a person goes to work in the workshop, with a job in his hand, listening to some knowledge or novels about TCM health preservation. I haven't had such a great enthusiasm for learning for a long time.

? After the third operation, I began to try Chinese medicine. At first, I went to the provincial Chinese medicine hospital to see the oncology department. The Chinese medicine prescribed by the doctor is very convenient, so I can just brew it directly when I eat it. It's been almost four or five months, and I don't feel anything. In July, I had a terrible headache and went for a second interview. The doctor said that I couldn't see a big problem because I suspected that I was allergic to MRI contrast agents. Just a normal scan, no enhancement. The doctor said to take painkillers if it still hurts. If not, switch to another painkiller. After seeing a doctor for so many years, I also know that taking too much medicine is not good, so I can bear it and try not to take medicine. Later, I was introduced to an old Chinese doctor, who is now seeing a doctor. The drugstore I run is a bit like a charlatan. It is said that the old Chinese doctor often goes to see a doctor after retirement. He has all kinds of intractable diseases there. The introducer said to look after a glioma patient, so I'll try it. I took the medicine with a grain of salt, but I didn't expect my headache to be greatly relieved. So I still ask him for medicine. I heard from the emperor's canon that it is effective to see Chinese medicine only if you believe in Chinese medicine. I have fewer doubts.

? At present, although I still can't control my ankle, I walk much better and don't mind being ugly. I have a disabled card. I was in my hometown at that time. Now I live a relatively normal life again. Although I don't know if it will happen again, I have the will to do my best to resign myself to fate. When I go to work, I feel less pressure when I get paid. I spend a lot of money on medical treatment, usually by myself. I go home to work with my husband every day to catch up with the drama, and it goes on and on.

? My medical experience has always been confused and confused. A group of patients were added during radiotherapy, and we began to understand the disease well. Looking back now, if I had known so much, maybe my original choice would have been different, but I think it would have been more difficult if I had known so much. I like to share my experience, hoping to help new patients. I hope that patients with this disease will not be devastated by the blow, and I hope that they will attract attention.