& lt I originally planned to go back to my hometown in the summer vacation, but I didn't expect my child to be terminally ill >

At the end of June, the children had their summer vacation. We are going to take our children back to their hometown to see their grandparents in the country, and take them to see the mountains and rivers in their hometown by the way.

After a week of careful preparation, I'm going to set foot on my journey home on July 7.

First, one night when I was taking a bath for my child, I found that Pippi, who was four and a half years old, had a lot of purple-blue bruises on his legs and arms, as if he had been injured by a bump. Obviously, the child is fine, without being beaten or bumped. How did this symptom appear?

I carefully examined other parts of Pippi's body, and found many blood spots on the neck and thigh roots. A sense of foreboding suddenly enveloped my mind, but I'm not sure what the omen is.

An instinctive reaction, I checked Pippi's symptoms online, and the result made my back cold. How can it be a symptom of leukemia! I'm still deeply shocked. No wonder Pippi has been calling himself very tired recently.

That night, I couldn't sleep, but I was afraid to tell my family for fear of worrying them. I just prayed in my heart that nothing would happen to my child.

I managed to stay up until dawn, so I took my child to the hospital for examination. It was past six o'clock in the afternoon when the test results came out, but the doctor had already left work.

The doctor in the lab told me, "Your child's platelets are really rare! From today, we must be careful not to let children find it, especially the head, so as not to cause cerebral hemorrhage. "

I left the hospital in a trance and walked home unconsciously. With mixed feelings, I kept saying: Pippi, don't have an accident, Pippi, don't have an accident ...

It's another inevitable long night, and I can't sleep at all. Pippi's lively figure and his happy laughter have always been in my mind. Why did it suddenly become like this?

The next morning, before going to work, I couldn't wait in front of the doctor's office. When the doctor read the examination report and asked me to go to Xi 'an Children's Hospital, an ominous premonition came to my mind again, and my heart almost jumped to my throat. My legs are so weak that I can hardly walk.

I took out my mobile phone and told the unfortunate news to my husband who was still at work.

& lt Pippi said he didn't want to die and wanted to go home and play on the slide >

When my husband received my call, he immediately asked for leave, and together with me, he took Pippi, 4, on a long-distance bus to Xi 'an.

Not to mention my own carsickness, plus two sleepless nights, fatigue and hot weather, I can hardly control myself, let alone hold the baby.

Fortunately, Pippi seems to be very sensible. When he got off the bus, he insisted on walking and was not hugged by adults.

Maybe the disease makes the child feel particularly tired. Pippi suddenly asked me weakly, "Mom, am I dying?" For a moment, I felt as if my throat was blocked by something and I couldn't speak, but Pippi went on to say, "But I don't want to die. I want to go home and play the slide in front of the supermarket! " "

After listening to the child's words, I couldn't hold back my tears at that moment. I tried my best to pick him up and strode to the outpatient department of Xi 'an Children's Hospital.

The big hospitals in the provincial capital are crowded. Because I didn't think of online registration in my panic, I couldn't get a timely diagnosis, but my child's condition couldn't be delayed, so I hurried straight to the emergency department.

The doctor in the emergency department told us that as long as there was no massive bleeding, we would have to wait until the next day to go to the clinic. However, online registration is gone within 4 days. When shall we wait?

In desperation, I can only find a place to rest nearby and go to the hospital to try my luck the next morning.

That night, even though we were tired from the long journey and settled the children, I still couldn't sleep. All I can think about is the child's illness. Is it terrible leukemia? Is the child still saved? Then I kept blaming myself for thinking the worst, and then I kept praying for the safety of my children.

The next morning, we rushed to the hospital again. My husband stood at the door of the doctor's office, eyeing the opportunity and begging the doctor to give him a chance to save the poor child. Tears came down as she spoke, and she almost knelt down to the doctor on the spot.

When the doctor saw this scene, he added an extra number to us, but we had to wait for others to finish it, which seemed to have caught us a lifeline.

Finally, it's our turn. The doctor asked for details and gave us a list. We waited for more than three hours just for the bone marrow puncture.

At the door of the puncture room, listening to the cry of the child coming from inside, I can't imagine whether my Pippi can hold back.

When Pippi, a 4-year-old figure, came out of the puncture room clutching his chest, he didn't cry, but I couldn't help crying.

& lt was diagnosed as an acute and serious disease, and the whole family was thundering >

The results of bone marrow puncture have to wait for 4 days, and other examination results are not optimistic. That night, the child was taken to the emergency room, and I saw the platelets were yellow for the first time. For the first time, I was shocked by the low price of a bag of platelets, and a bag actually asked for 1500 yuan!

I stayed at the child's bedside all night, and the next day I was transferred to the inpatient department. The sight here refreshed my vision: the bald children were surprisingly consistent, pale, bloodless and swollen. Maybe chemotherapy made me confused whether these children were boys or girls.

The scene I saw on TV before, but today it is truly displayed in front of my eyes, which makes me unable to believe that this is a hospital, as if standing at the gate of hell.

I sympathize with these poor children, but I am afraid that one day our Pippi will become like this. How can I accept it?

Then the doctor told me that there are two possibilities for the child's condition: acute leukemia and aplastic anemia, both of which are difficult to treat. My mind is blank, I only vaguely remember the word "anemia" and I have never heard of "aplastic anemia".

I have seen this disease again and again on Baidu, and the result I found can be said to be death, but I hope the doctor's guess is wrong, and God will not make such a big joke with us. I tried to comfort myself, but I couldn't help thinking.

& lt The child's life hangs by a thread, and the whole family will accompany him for treatment >

When my father heard the news, he came to Xi from his hometown. He appeared in front of me with a tired body: a face full of vicissitudes of life, white hair. I advised him not to come because my father had a bad heart and was afraid that he would worry too much. What if something happens again?

He insisted on coming, and nothing else could help, except running an errand. It was he who brought the puncture report.

That piece of white paper seems to weigh 1000 pounds. When he handed it to me with trembling hands, I saw that the report was impressively written: aplastic anemia. I can't believe this is true, and I don't want to believe this fact, but I have to force myself to accept it.

On July 14, the doctor told me that in order to further understand the child's condition, bone marrow biopsy and genetic testing were needed. This is different from the first bone marrow aspiration. Do it at the waist, anesthetic can't be used. The pain can be said to have multiplied several times. I heard Pippi crying at the door, and my heart ached. I hope I can bear this pain for my children. After all, the child is still so young.

On July 15, the child was discharged after receiving platelets and red blood cells. Because I didn't understand the subsequent development of the disease, and because Xi 'an was too hot to wait, I simply took the medicine and went home to wait for the biopsy results.

Unexpectedly, only one day after returning to China, platelets fell to single digits and the situation was critical. I rushed to Xi 'an Hospital overnight. On the way, the child began to have a high fever, his face was sallow, his lips were white and he was groggy. We were allowed to enter the emergency room again.

On the morning of July 2 1, the doctor told me that there was no major genetic problem in the biopsy results, but the child's condition was very serious. The best way is to do stem cell transplantation, and let me prepare 400,000 to 500,000 to go to Beijing or Shanghai.

After listening to the doctor, I was shocked. We are an ordinary family. My father is old and sick, and my mother is mentally retarded. My husband is the only one in the family who tries to make money. I take care of the children and have no financial resources. The burden of the family is on my husband.

Four or five hundred thousand is an astronomical figure for poor families like us, and it is like a bolt from the blue for us. Where can we get so much money?

Is there no better treatment? Is our little Pippi really hopeless? Don't! I would rather die by myself than cure my child's illness. He is so young and lovely that he has only been in this world for a few short years. How can he watch the child hopeless?

Later, I heard patients say that Northwest Women and Children Hospital can do stem cell transplantation. So we immediately transferred to this hospital. I remember it was transferred on July 22, but the number of hematology department hung up that day, so we can only hang the number on the 23 rd.

Because there is no small hotel near this hospital, I have to go back to the children's hospital. After a lot of effort, I finally checked into the Northwest Women and Children's Hospital on the evening of 23rd, ready for matching.

At this time, the child had a fever again and finally retired after 7 days. It was in these seven days that I learned from the doctor that this disease requires frequent platelet transfusion, that is, to combat fever and various infections, it is necessary to prepare at least 300,000 stem cell transplants in advance and prepare for a protracted war.

? Once again, we were discharged from the hospital, but faced with nowhere to live. For seven days, my father has been curled up in a row of chairs in the hospital corridor at night. We dare not go home again, because once the child's condition deteriorates again, it is very dangerous to run to Xi 'an. In order to prevent children from being trapped by danger, we have no choice but to consider renting a house.

My husband finally rented a clean and comfortable house after going through the process of wasting his legs, but the room fee was particularly expensive, and the rent had to start in a year, but in order to treat the children, he had to bite the bullet and rent it.

The next day was tossing back and forth between the hospital and the rented house. There is no bus on this road, and taxis are too expensive. In order to save the children's life-saving money, we choose to walk, and we always coax the children to walk for a while. If we can't walk, we'll hold them for a while. This persistence is a few months.

Pippi's fever is common, and platelet transfusion can only last for a few days.

The most important thing in my bag is a small watering can full of alcohol. No matter where children go, they should spray in advance within their activities to minimize the chance of infection.

In the process of long-term blood transfusion, Pippi's skin also spread to the whole body from the beginning, and his small arm was covered with old and new pinholes. Every time I put a needle into nucleic acid, I have to coax him for a long time before he cries and cooperates.

Children often say to me, "Mom, don't treat it, let's go home." I can only coax him, "Pippi is the best. When he is cured, he can go home and play the slide at the gate of the supermarket. "

I watched him nod silently, but tears always poured out disobediently.

Our life is full of suffering. I stayed in Xi 'an to look after the children and went to the hospital for platelet transfusion. Husband can only go back and work hard to make money while raising money everywhere.

On holidays, he takes a bus for three or four hours to accompany his children for two days. In order to save money, he had to give his platelets to his children, because when the platelets were nervous, the hospital could not make an appointment and had to use his own. You don't know how painful it is until you experience it.

During this period, my sister also quit her job and came to Xi 'an to change her father and go back to cook for us. After all, dad is in poor health, and he is exhausted after such a long time. Mother looks after the boss at home and goes to school.

I once heard of easy fundraising, and with the help of the staff, I launched a fundraising. Just then, my phone kept ringing. Looking at the love donated by everyone from all directions, there are relatives and friends, classmates and many strangers. Although not much, this love always moved me to tears. Thanks to so many kind people, they not only participated in the donation, but also cheered for us, encouraged us to stick to it and wished our children a speedy recovery. In the face of surging love, I don't know how to express our family's gratitude, so I can only say, "Thank you!" " "

& lt "Good intentions are rewarded" to save children on the line of life and death >

After more than two months of suffering, 10 finally waited until the day when we entered the warehouse. Because I need my father's stem cells, I gave my father various tests in advance, and my child also did various tests and picc chemotherapy.

When Pippi experienced the unspeakable pain of burying the tube and another bone marrow puncture, we waited for the doctor's arrangement hopefully and looked forward to the stem cell transplantation as scheduled.

On the evening of September 29, the doctor suddenly said that Pippi's evaluation results had improved, and suggested to observe for another month or two.

I don't know whether to be happy or worried. "The evaluation results have improved" is really good news, indicating that the child has been saved, but I am afraid that it will be transplanted in another two months, and the rejection after transplantation will torture the baby.

I followed the doctor's advice after several internal struggles, and the doctor gave us a medicine (Atropopa ethanolamine tablets), but the price of this medicine shocked me again. A box can only be eaten for 28 days, and it costs 5980 yuan, but there is no way, no matter how expensive it is, it is important to save the child's life.

In the past few months, the warmest words I have heard are "good people are rewarded."

It may be the blessing of God or the love of everyone. The medicine we use is effective. 1 1 finally got rid of platelet transfusion and red blood. Although Pippi's indicators have not completely returned to normal and his skin is still yellow, we are out of danger.

In order to prevent recurrence in the future, we should take the medicine for about 3 to 5 years. Although we have to pay more than 10,000 yuan for medicine and reexamination every month, I believe my Pippi will recover, and we will stick to it and never give up.

Qi 202 1 Advanced Reading and Writing Camp