1. Myasthenia gravis is a chronic disease, which requires long-term follow-up, drug adjustment and disease control. Out of the mentality and inertia of "taking a shortcut", we expect a "once and for all" treatment method, which leads to a small number of patients "seeing a doctor indiscriminately" and spending more money and taking fewer detours. Among the patients we meet every day, there are not a few opinions that "taking a few pills can cut the root" or "cutting the thymus can cut the root". If we can objectively understand the characteristics and laws of myasthenia gravis and establish a positive attitude, we can well cooperate with doctors' standardized treatment, thus avoiding detours and falling into the fraud trap thrown by informal or illegal medical institutions.
2, lack of understanding of the development and evolution of the disease, thinking that everything will be fine if you take medicine in the hospital. In fact, the situation is far more complicated than imagined. On the one hand, the evolution of myasthenia gravis has its own laws, on the other hand, it takes time for drug treatment to take effect. For patients with myasthenia gravis, even if doctors give targeted treatment, the condition may continue to deteriorate and even develop into a crisis in the next period of time. Just like when we are driving at the speed of 1.20km/h (progressive disease), the car can't stop immediately after sudden braking (treatment), and it will slide inertia. If the front is deep, you may roll over. If you can't understand this situation, it is easy to have anxiety and fear about the declining disease, and even lose trust in doctors, which will affect doctors' further medical decisions.
3. Patients with myasthenia gravis should understand the symptoms of the disease itself. In the long-term development of the disease, it is easy to blame other physical discomfort on the recurrence of myasthenia gravis. The most common phenomenon in outpatient service is that patients complain of throat discomfort and have a sense of obstruction, which is related to the symptoms of myasthenia gravis in the medulla oblongata, and they are prone to panic and think that their condition is repeated. In fact, if you test the voice of swallowing, drinking water and talking yourself, if it is normal, the chief complaint of this discomfort has nothing to do with repeated muscle weakness, but is considered as a somatization symptom (formerly known as plum qi or hysteria ball). As a chronic disease, myasthenia gravis is easy to cause psychological and emotional problems. Fatigue and weakness caused by depression or anxiety will in turn aggravate the discomfort of patients. If they can't tell the difference, they will think that their illness is repeated, which will aggravate anxiety and worry. Therefore, patients need to learn to distinguish between recurrence and non-recurrence, which can reduce panic and reduce the number of visits.
4. Many patients will ask: "Doctor, does this disease need to be avoided?" Many people say that seafood is spicy and exciting and cannot be eaten! " I don't know where these statements come from. They are probably the extension of China people's idea of "keeping in good health with traditional Chinese medicine". For western medicine, patients with myasthenia gravis have no special taboo food, as long as they pay attention to balanced nutrition and are easy to digest. Whether it is seafood or river fresh, since they like to eat, eat some! Don't be confined to a narrow space by some unfounded "experience" In addition, many patients will ask: "Doctor, do you need to eat health care products?" Health care products are also a big pit, not to mention whether heavy metals such as Cordyceps sinensis or Fengdou exceed the standard, but there is no evidence that these health care products labeled "Chinese medicine" have a positive effect on the treatment and control of autoimmune diseases. I don't know if there will be any evidence in the future, but it can't stand scrutiny now. Or let's change our thinking. White people don't have health care products. Is it because their disease treatment effect is worse than ours?
These are the four misunderstandings of myasthenia gravis introduced by Yin, a flaccid expert. Knowing the misunderstanding of myasthenia gravis and getting out of it, myasthenia gravis is actually not terrible. Keep a good attitude, actively accept the doctor's treatment and self-rehabilitation exercise, I believe it will be of great help to your illness.